My manuscript

Sometimes when I think about it, I get all excited to sit down at my computer and start writing again. Especially after receiving feedback from the few individuals who I've asked to read it. When they say it's good, that it's really good, it motivates me so much.

Then life gets in the way.

Diapers need changed, meals need to be served, baths need to be given, stories need read, little ones need to be tucked in.

And after all that, I'm usually too exhausted to open up my manuscript and write. There just aren't enough hours in the day, it seems.

Do I at least get points for thinking about it? Because I think about it a lot. Usually more than once a day.

Sometimes I think I should sit down and at least outline the major points I hope to cover in this story of living my life as a parent with bipolar disorder. You know, an intro, middle and ending. Tie it up with a neat little bow.

The last person who read it and sent me feedback {incredible, detailed, awesome feedback, let me just say} had a good point: it's hard to outline the book because it's not finished yet. I'm still living this life that I am writing about.

Speaking of not being finished. My husband and I are so incredibly grateful to have two precious little ones, a girl and a boy, nonetheless. Sometimes I think we hit the jackpot. Especially since I took medication during my second pregnancy. But I had a surprising feeling emerge after the birth of our daughter.

I don't think I'm done yet.

Surprising because I had intense morning sickness during her pregnancy. So much so, that I took Zofran for six weeks. I had early contractions that sent me to the hospital for monitoring overnight, not once, but twice before she was born. I had awful heartburn almost daily, a bladder that constantly felt as if it were going to explode, and a good night's sleep was distant, distant memory.

But the day after she was born, I knew I could do it again. My husband used to say that he always wanted to have three kids. He and I were both the product of 2-kid families, and I could see his interest in maybe adding another to the mix, but I thought I only wanted two myself. After we found out she was a girl I proclaimed we were done. Then she arrived and I instantly forgot about all the discomfort that the pregnancy caused.

I think you just have that feeling as a woman. You know when you are done and when you're not. And I don't think I'm done yet, plain and simple.

Know it or not, we're not planning on crossing that bridge yet. And so the story isn't truly finished yet. If we do go on to have another child, one thing is for sure: I will continue on Lithium during the entire pregnancy. There is an increased risk of a heart defect, but the benefit of my staying on medication - the medication that works so well for me - vastly outweighs the risk of taking the medication during a pregnancy, for me. For me, and the experience I've had thus far, it's a no-brainer.

So for now, I will go to the manuscript from time to time to tweak and write, but my focus at the moment will be this blog and reaching people through this medium. There are so many ways to reach people, and I hope one day to be in print, but right now I think that one of the best ways is through blogging about my journey.

I will blog on.

Two years ago today

It's been two years to the day today that I was last hospitalized for a manic episode.

And what a storm it was. I had just found out I was pregnant and thus was so excited I couldn't sleep for a week. You see, it had taken us ten months to conceive the little lady and being the impatient, total Type-A person I am, that was just way too long.

When I don't get enough sleep, it leads to mania. My thoughts race out of control, I start talking in circles, and I lose touch with reality. My husband knew the signs all too well. He knew what needed to be done.

Within thirty minutes, his mom was here to help with our 18-mo old son, and the EMT's and two police officers were standing in our bedroom trying to talk me into going with them to the hospital. When I wouldn't consent, my husband signed some papers, and they cuffed me and put me in the squad car. Luckily this time it was pitch black outside and they didn't have their flashing lights on. So hopefully the neighbors didn't see and think I was being arrested.

Crazy how far I've come in those two years. I've learned so much over these past six years living with bipolar disorder. I've learned how important my family is to me, I've learned which friends care enough to actually talk with me about what I've been going through, and most of all I've learned that I can overcome this "mental illness" to make my dreams a reality.

Six years ago I was so crippled by depression and anxiety that at times I didn't want to go on. I was being so selfish, but I saw how my condition was affecting my family and I hated that I kept bringing everyone around me down because of my mood. I felt like I had lost my identity because the career I had worked so hard to build over the past four years came to a screeching halt after my second hospitalization. I couldn't handle the pressure at work any longer - the pressure that had pushed me to work harder and smarter over the years was now causing panic attacks and driving me deeper and deeper into depression.

Ultimately, I had to resign from my job and with that I felt like I was a nobody. I was worthless. I was sad. I didn't feel like there was anything worth living for.

Looking back, it basically took me all of 2006 to pick myself up again. I went through so many weeks of crying hard every.single.night. It's hard for me to think about what my parents and husband went through during that year. I don't know if I would have been strong enough to stay positive and supportive to someone who was so incredibly sad.

But they did. And Thank God they did. I am eternally grateful to them.

I never would have imagined that I would be where I am today without the love and encouragement of my dad, mom, and husband. Along with my in-laws, brother, two sisters-in-law, and a handful of close friends, I trudged through 2006 and made it into 2007. I made it to see another day.

And now I know that there is so much to live for.

I am so thankful to have found a medication that works for me. I know that I am lucky. I take my medication religiously and stay on top of my moods to make sure I continue to stay stable. I have too much going for me to end up in the hospital again. I don't want to miss a second of this life.

Because it really is too short when you think about it.

I remember when I lost my mind for a reason

I remember when, I remember

I remember when I lost my mind

There was something so pleasant about that place

Even your emotions have an echo in so much space

~ Gnarls Barkley: "Crazy" lyrics

Whenever this song comes on the radio, or "Unwell" by Rob Thomas for that matter, I think of my the time I spent in the hospital. Having to be committed against your will, to get well because you cannot help yourself, is a very humbling experience.

I remember some significant moments about the last hospitalization. Specifically, how when my husband had to call 911 to have them come and take me, I pleaded with the EMT's and police officers to let me introduce my son to them. I was so excited for him to get to meet an actual police officer in person. He had such a fascination with police cars, fire trucks and ambulances. Such a typical little boy. My mother-in-law was in the nursery with him, trying to get him to go back to sleep. He had been sleeping, but woke up to all the commotion I was causing in my fight to not go to the hospital. My baby, at only 18 months old, was so sheltered from what was happening to his mommy. My other baby, the one that was just a tiny little miracle in my belly which we had found out about only the week before, would never know that her mommy needed to get well before she would ever be able to take care of two little babies.

I was the textbook definition of "crazy", and needed the medical attention I could only receive in the hospital to be able to come home and focus on my health so that I could be the best mommy to my little boy. I like to think that I retain some of the clear memories that I have from my hospitalizations so that I remember how important it is to stay on my medication and see my doctor and therapist regularly.

These days, I like to sing those songs when they come on over the radio.  They remind me that bipolar disorder is just a part of who I am, and it doesn't define me as a person. I think I experienced those four hospitalizations for a reason, and I am a stronger person because of them.

Just a few thoughts on stigma

{From wikipedia} Social stigma: a severe social disapproval of personal characteristics or beliefs that are against cultural norms.

Sometimes I wonder if other moms would think differently of me if they knew I was living with a Bipolar Disorder diagnosis.

I read a brief article online last night about a woman writer who is Bipolar, but she strongly advises people who have the same condition to not reveal their true identity online for fear of being looked down upon by their employers, discriminated against, and ignored - simply because they are living with a mental illness.

As much as it saddens me to do so, I guess I would have to agree with her. Just makes me so frustrated to read those words, and know that so many people probably think and feel just as she describes.

I also get upset when I see so much - I mean so much - support online for women who have suffered Postpartum Depression, but not nearly any support for people like me whose moods tend to lean more heavily on the complete opposite end of the happy/sad spectrum. (Please, please don't get me wrong - I think it is incredible that there are so many resources out there for women dealing with PPD and so many amazing women willing to share their stories in order for others to see the light at the end of the tunnel.)

I guess I'm just a bit sad that A) there isn't nearly as much awareness for PPP than there is for PPD and B) there is such a negative connotation about the diagnosis "bipolar disorder" in general. Makes me really scared to ever reveal myself to anyone other than my family and my closest friends.

One of the biggest things I've been turning over and over in my head lately is that I didn't ask to be diagnosed with Bipolar Disorder. It's just like someone being diagnosed with a brain tumor or breast cancer. They didn't ask for it to happen to them. It just did. And now it's their life and they have to learn to live with it.

And people who are diagnosed with brain tumors or breast cancer sometimes start campaigns to raise awareness about their conditions and they do fundraisers to donate money to organizations fighting for cures for their diseases.

But if I tried to do that - even just the awareness part - I could be ostracized and looked down upon, and maybe would never be hired to work in my previous profession again.

How is that fair???

That's all for now. Yawning non-stop here and need to hit the sack. I guess I'll sleep on it.

Checking in with the doc & Kony 2012

Had a checkup with my psychiatrist today. I brought the kids with me since it's only a 30 minute appointment and it was right at 12pm, so I fed them before we left and brought the ipad to try to keep them occupied. She brought in a few toys for my little man to play with and my daughter sat in the stroller happily tapping away at the ipad. A tiny bit distracting, but nothing a mom of two toddlers isn't used to. I like how my doctor asks about my writing. She knows it is important to me and she supports my voice. My last psychiatrist didn't read my book draft since I became emotional during the one appointment when I told her about it, handing her the draft to read. She told me at the next visit that she hadn't read it since I became so upset. The fact that she didn't read it (or so she said) made me sad. I was handing her a glimpse into my thoughts, feelings, and emotions having lived with bipolar disorder and she turned around and told me what felt like "you're not worth my time outside of paid appointments."

I would have stopped seeing her, but didn't really have a choice since insurance was covering my visits at almost 90%. So I stuck with her until our insurance changed and I was forced to find a new doctor. I was lucky enough to find a very good one whose office is only 5 minutes from our house.

We talked about my mood during today's visit and I admitted I've had some hypomanic periods over the past two months, but they are manageable. I always have a good sense of awareness about my moods and when I feel an elevated period, I know that I need to get more sleep and nap when the kids nap. I take Ambien if my mind is still buzzing when I know it's bedtime. I'm also fortunate in that my husband stays on top of things too and encourages me to get rest when he knows I need it. We work as a team to keep me healthy and I like that.

My doctor and I discussed the recent news of the Kony 2012 movement and how Jason Russell, the filmmaker who was the voice of the campaign, was recently hospitalized in California under a 5150 psychiatric hold. He was trying to raise awareness about a horrible war that was going on which most Americans probably knew absolutely nothing about until news of the viral video his organization created hit the evening news. When I first watched the video two weeks ago, I'll be the first to admit, I was kindof shocked by the message of "Making Joseph Kony famous". But then it hit me. What better way to slap the world in the face to get them to realize how much shear devastation this one person has caused to so many innocent children? The campaign had a call to action too. They want to get the word out to have Kony arrested and put to justice. By the end of the 30-minute video I was a follower. I even shared it on my Facebook wall, encouraging my friends to watch it.

And then the story broke on Friday about Jason's detainment by police after he was found naked on the streets shouting obscenities and pounding the pavement with his hands. The first thing I did was remove the share post of the Invisible Children Kony 2012 campaign from my Facebook wall.

How incredibly narrow-minded and judgmental of me to act in such haste. I immediately didn't want to be associated with the guy just because he had suffered a public mental breakdown? Wow. Talk about needing to have an introspective weekend.

All I could do was think back, all weekend long, about how his story has some similar characteristics to my own. Not nearly on the same scale, of course, but in small part, similar. At the time of my first psychotic episode, I was under a great deal of stress from my career and the goals management had set for me in the coming year, in addition to being in the midst of an emotional affair with a co-worker and mid-way through building a brand new single-family house with my husband. Talk about having a lot on my plate.

I feel so blessed to have had the support I did when I went through that most trying time of my life (and theirs, I'm sure.) My husband did not abandon me, my parents and in-laws wrapped their arms around me in support, and my closest friends were there to listen to what I was going through whenever I needed to talk. I was so lucky that I didn't have to suffer in the public eye like Jason is right now.

I'm sure there were things said behind my back by people wondering what the heck was going on with me. But I didn't have to read about it online or hear about it on the news like his friends and family are doing right now. I pray that they don't read or hear the negative words being thrown about on the Internet and news talk shows, and that if they do, that it only strengthens their defense for him and their efforts to help him get well. I'm praying for him. He's done so much good work. He does not deserve all the hate. Not one bit of it.

I am not proud of my initial reaction to what happened to him. I wanted to write about it here to help teach myself, someone who suffers from a mental illness which caused four psychiatric hospital stays, not to turn my back on someone because they are going through a trying time. Let this be a learning experience to myself and the other 83 million people who watched the video. Don't turn away because I believe that some people come into our lives as blessings, and others come into our lives as lessons.

Psych ward socks

I have a confession to make. I still wear the hideously ugly, ill-fitting, but somehow comfy, psych ward socks. Weird, right?

They are grey and have those no-slip grippy things on the bottom just like my kids' socks and they bunch up awkwardly at the ankles. But yet I still have them in my sock drawer and I still reach for them when I go to pick out a pair of socks.

You would think that they would bring back horrible, terrible, awful memories of being locked up in a mental hospital against my will. Taken away from my babies so that I could get well. But that's just it: I needed to be there. To get well. So I guess that is what I think about when I put them on. How I got well when I wore them.

I can remember the last time I was in the hospital and my Dad and husband came to visit one evening. I don't know what it was that I said, but I can remember clear as day my husband saying to me, "You could ask them for another pair of those cozy socks"  and it makes me smile.

I did ask the nurse's station for another pair, and I must have asked for a third and fourth pair while I was there because there are four pairs of those pathetically ugly pairs of socks in my sock drawer: three grey and one blue. Would've been nice to have a pink pair, you know, for a flash of color in all the blah neutral.

Sometimes when I'd run out to grab the mail in the afternoon while the kids napped, I would worry that the neighbors would see me in my psych ward socks and then they'd just know. That was then. But I am starting to not care anymore. And it feels good.

Besides, how would a crummy pair of grippy hospital socks tip them off?

I have decided to make some changes and move towards putting my real name and face on this blog. If I am ever going to help erase stigma, I cannot hide behind an anonymous blog. That just doesn't make any sense whatsoever.

A good friend of mine who I recently trusted to read my blog sent me an email saying that she thinks that it will be an amazing resource for people that are going through what I went through and are also scared to get pregnant.  She went on to tell me in an email that she thinks I am an inspiration for people in the community because I am living proof that someone can manage the disease, have healthy children and an amazing, fulfilling life. She made me start to realize that it is important that I am trying to do what I'm aspiring to do one day through this blog. And I believe a big part of that is showing my true identity. I owe her a great deal of thanks for her encouraging support. It means so much to me.

But I'm not ready to do it all at once. Bear with me. Call it suspense, if it makes it more fun.  Call me a scaredy cat. I'll just call it me being nervous. Whatever. I'll get there.

Let's start with this. Baby steps. Me in my psych ward socks this morning.

A risk worth taking; a list worth making

Back when I was first diagnosed my dad had what turned out to be a genius idea: to journal about my illness. Every day he wanted me to write down four things: the date, how I was feeling, what meds I took that day, and any side effects I was experiencing. He was determined to figure out what the heck was happening to his little girl, and this little idea was one of the only things he could get me to do which in the end would help in more ways than we knew when I started. After my most recent hospitalization (which was right after we found out I was pregnant with our second child) I had a very hard time bouncing back. It is true that I respond very well to Lithium, but at the time I was adamant about not going back onto Lithium until I was past the first trimester because of the risk of Ebstein's anomaly. In reality, my risk was only about 6% if I had used the Lithium during the first trimester, but I refused. And I am very stubborn. And determined. And I got my way.

But looking back I wish I would have just used the medication which I so desperately need flowing through my bloodstream each and every day. Lithium to me is like insulin is to a diabetic. I know this now.

So instead of using Lithium during the first trimester, my psychiatrist agreed to use Haldol to treat my mania. It is the drug that they inject into my backside when I am hospitalized because I reject all oral medications when I am manic. Lucky me. They would have to use three people to hold me down while the fourth administered the drug. It would start working within fifteen minutes - by that point I'd have been walked back to my room and tucked into bed to sleep and let it work its magic. Once I was discharged from the hospital, I had my oral prescription for Haldol filled and continued on it for a few weeks.

Those weeks were such a huge struggle for me. Mentally I felt as though I could not put my thoughts together in sentences. Simply speaking a basic sentence was so incredibly difficult. I barely went out in public for three weeks because I was so afraid of not being able to hold a basic conversation.

I also had a very hard time writing. I found it hard to journal then, mainly because it was so hard to think let alone use a pen to write down those thoughts on paper. My family blog which was normally filled with descriptive paragraphs of what I had been doing with our son each day, were now filled with just little video clips and some pictures here and there. I felt paralyzed to an extent. It was almost as if I could feel the neurons straining so fiercely to fire off some kind of signal. But the neurons were back-firing. Badly.

The chemicals in my brain were so completely off and I wanted more than anything else to just turn them back on.

My dad had another brilliant idea during this difficult time. He told me one morning when we were talking, to make a list of 10 things I wanted to accomplish that day. They could be as simple as unload the dishwasher, make the bed, fold the laundry, or bake cookies with my little man. This way, I could look back on my day and see all the things I was able to get done. This simple method of goal-setting worked like a charm for me.

I still use this tactic to this day. I love to sit down in the morning and jot down the things that I want to accomplish that day. The weeks that I do it, I feel like I get so much more done around the house. For my family and myself. It's such a great thing to build into your daily routine.

Around week 10 of my pregnancy, fed up from the daily struggle with my malfunctioning brain, I decided to do something about it. I distinctly remember the day I called my high-risk OB-GYN to ask him if I could just go back on the Lithium right then, instead of waiting until the end of week 13. I was pretty much in tears on the phone and he said that I needed to do what was right for me. And that it seemed like I needed it. It being the Lithium. I said yes, and felt an enormous weight lifted off my shoulders when I hung up the phone.

After about a week back on Lithium I began feeling like myself again.

It was a well-calculated risk and one that I was glad that I took. Having to choose between taking a medication while pregnant or struggling with a mental illness that causes you physical stress and trauma is one that I wish no woman would have to make. But sometimes we have to make hard decisions. I was very scared and felt an enormous amount of guilt for having to subject my unborn child to a potentially harmful substance while she was growing inside of me, but if I had to do it over I would do exactly the same thing.

I'm forever grateful that she was born healthy and today is a thriving toddler who pushes the limits every single day. And I'm thankful that I have such a supportive husband and parents who were right there with me every step of the way encouraging me to make the best decision for me at that moment.

Opening doors

Life has been very busy lately. The last time I posted was three months ago, although I've thought many times over the past three months about logging in and typing up a new post. The holidays came, I got wrapped up in everything, then we traveled south to visit my family and I just haven't set the time aside to blog. Shame on me. Definitely feeling guilty about it. This whole project is overwhelming sometimes when I think about my end goal: to publish a book which will be a resource to other women who live with bipolar disorder but also want children. However, when I step back and try to see it as smaller pieces, baby steps towards the bigger picture, I can jump back in. I have to remind myself that over the past few months I have taken some small steps towards moving things along, even if I haven't made any further progress on the actual page count of the draft.

I recently stumbled upon the blog of an inspiring person: meet Ashley of Lil Blue Boo. I was immediately captivated by her life story so far, her writing, her sense of humor, and most importantly, her outlook on life. Her "about me" section mentioned that she loved reading memoirs, of famous people and not famous people. So after writing and deleting four or five versions of an email, I finally just went for it and emailed her asking if she'd be open to reading what I have written so far. She wrote back within 10 minutes. I was shocked. And giddy. She said she would love to, and she'd be honored. Wow. That was so cool.

The most incredible thing about her is that she is has so many things going on in her life right now. She's in the midst of a fierce battle with cancer. She runs a super cool sewing/crafting company. And she has her own family to enjoy and take care of. But she offered to read something I wrote. I feel a little guilty about asking her to read it during the whirlwind of what is going on in her life, but I can only hope that it is a tiny little escape for her as she reads the 57 pages I sent.

I just read a post on a blog that a close friend of hers writes about how they are holding an auction to benefit her medical expenses next month. I immediately emailed the fundraising chair after I finished reading to see how I could contribute in some way. I know this will be huge, and I am excited to be a part of it. It is unreal what people can do when they put their minds to it, even if it is all online and they don't get a chance to actually meet in person. The magic of the internet amazes me sometimes. Doors open.

My daughter just turned 13 months. A few weeks ago I noticed she had this fascination with closing doors. She's a short little thing, so of course she cannot reach the door handle to open it back up once it's closed. But she doesn't seem to mind. She just walks over to the next door, with a big smile on her face, and closes it, giggling. Makes me smile every time. But in the back of my mind I couldn't help but think about how it reminded me of the last time I was in the hospital - right after I found out I was pregnant with her.

I was only 5 weeks pregnant when I suffered a manic episode brought on (as it had been the three previous times) by lack of sleep due to my excitement over finding out that we had become pregnant finally with baby #2. I remember bits and pieces from my hospital stay. One thing that I remember vividly though is opening and closing doors as I wandered around the ward in my psychotic state. I think I became even more and more confused each time I opened another one, trying desperately to figure out where I was and what the hell was going on. Until the meds finally kicked in, I was left to let the mania run its course. And man, did it. Luckily for me, the doctors all tell me that I "respond beautifully" to medication. Not that I think having to be on medication is beautiful. But whatever. I'm just glad that it brought me back to reality, and that miraculously my daughter was born healthy.

This is what it is like living with a mental illness. Yes, I manage it well and have become a model patient in that I take my meds and go see my psychiatrist and therapist at regular intervals. But I will always live with the flashbacks from my episodes and they sometimes emerge from current events in my life which are unrelated at the surface level. I guess they are just God's way of reminding me to stay on track since I am in charge of my own mental health. I've decided to adopt Ashley's mantra of "Choose Joy". She's one in a lifetime. And I am so grateful to have been impacted by her story.

Full disclosure

So in beginning this project I decided to consult with my husband to make sure that I had his full support. He knows that I have been wanting to do something like this for a long time, I just wasn't at the right point in my life to be able to do it until now. I believe that I am a strong writer.  People have told me that I am an excellent writer actually. But in my opinion, there is one huge roadblock standing in the way of my blog becoming a success: full disclosure. Coming out to the world and saying that you have bipolar is such a scary thing. There is so much stigma attached to the label of bipolar that it makes it almost impossible for most people to admit that they have the diagnosis at the risk of losing friends or losing their job. Future employment is probably the major reason my husband and I are nervous about unveiling my identity completely.

As an avid blog-reader, I myself know that unless a blogger shows their true identity and describes his or her life in detail and with pictures, their blog is not all that interesting or captivating. I want to be able to share without strings attached and at this moment this isn't possible. Not without my husband's approval and he did make a valid point when we talked this evening. He wants me to think about it more.

I've had what I would consider to be a successful career so far as a Recruiter and, although I'm a stay-at-home-mom right now to our two kids, I'd like to work again. I am easily described as a Type-A personality who craves challenges and goals to exceed, so I predict that there will be a time in the next couple of years that I will want to do some type of recruiting work and therefore I would need to be hired by someone. Whether that be a private client hiring me to do some freelance recruiting, or a company hiring me as a contract recruiter, it's all I've known career-wise for the past 10 years and it is work that I do well and enjoy. So will coming out to the public that I am bipolar hurt my future chances of employment?

I guess in a sense I'm also wondering, "Will my diagnosis revelation change the way people in general feel about me as a person?" I really hope not. That would truly be sad.

Only time will tell. I'm going to consult a few more people who I respect given their situations surrounding bipolar disorder and disclosure, in addition to my parents and brother, to collect some opinions which will help me to make this very difficult decision.

Have you ever been scared to disclose to friends or colleagues/bosses that you are bipolar? How did you handle the decision?