The Hospital Badge

yyellowbird via Compfight cc

When I meet other people who live with mental illness, it’s inevitable that at some point the topic of hospitalizations comes up. It’s as if the number of times you’ve been committed is like a badge of honor.

It’s not, but it is at the same time.

When you’ve been in the hospital, you learn how to fight to get well. You learn to have compassion for other people’s struggles. You learn to realize that your brain just doesn’t work like a plain old regular person’s brain works.

And so you learn coping mechanisms for how to manage your illness.

In group sessions you’re taught how to listen and be present in the moment. You're shown how to use art to express your feelings and work through your emotions in art therapy. During the exercise class you might appreciate the calmness that comes from the breathing exercises and stretching of yoga.

But it doesn’t mean that you’ll be fine when you’re released. For me, having been hospitalized for mental illness was... a very traumatic event, each of the four times it happened.

When I came home from the hospital each time, I’d hide my feelings of guilt and shame, not really opening up about what I had been through to anyone but my therapist. It would take weeks to return to stable, and I was constantly desperate to talk with someone else who understood what I had gone through.

Luckily, I have met some friends through support groups and other avenues, who have also been through hospitalizations for mental illnesses, and it’s always interesting to compare notes. But when it comes down to it, those types of stays are all the same. Meds, therapy, paperwork, release. Then you’re on your own.

Through blogging I’ve had the privilege of hearing from some of my readers who've reached out to me via email saying they’re so glad I’m writing because stories like mine are important to share. They’ll sometimes tell me how hard of a time they’re having, and how they wish they could just go to the hospital for a week or two, maybe it would help.

What I want those readers to know is that going to the hospital may help take the edge off momentarily. But when you get out, and you’re back at home, it’s sometimes easy to fall right back to where you were before you were admitted.

Life goes on. The world keeps turning. And we have to keep on learning to lead the dance with our conditions, lest they turn us in the wrong direction.

For me, this means protecting my sleep. Last night my allergies were in an uproar, given the change in the weather this past weekend. My fitbit displayed a horrendous sleep pattern. I went to bed at 9:15pm (the earliest I’ve been in bed for the past three weeks by an hour) but yet it was quite possibly the worst night of sleep I’ve had in that many weeks.

But I won’t give up. I'm working on staying on top of my triggers to ensure I stay mentally healthy. For myself, for my family, and for my community.

And on that note, it’s time for me to hit the sack.

Checking in with the doc & Kony 2012

Had a checkup with my psychiatrist today. I brought the kids with me since it's only a 30 minute appointment and it was right at 12pm, so I fed them before we left and brought the ipad to try to keep them occupied. She brought in a few toys for my little man to play with and my daughter sat in the stroller happily tapping away at the ipad. A tiny bit distracting, but nothing a mom of two toddlers isn't used to. I like how my doctor asks about my writing. She knows it is important to me and she supports my voice. My last psychiatrist didn't read my book draft since I became emotional during the one appointment when I told her about it, handing her the draft to read. She told me at the next visit that she hadn't read it since I became so upset. The fact that she didn't read it (or so she said) made me sad. I was handing her a glimpse into my thoughts, feelings, and emotions having lived with bipolar disorder and she turned around and told me what felt like "you're not worth my time outside of paid appointments."

I would have stopped seeing her, but didn't really have a choice since insurance was covering my visits at almost 90%. So I stuck with her until our insurance changed and I was forced to find a new doctor. I was lucky enough to find a very good one whose office is only 5 minutes from our house.

We talked about my mood during today's visit and I admitted I've had some hypomanic periods over the past two months, but they are manageable. I always have a good sense of awareness about my moods and when I feel an elevated period, I know that I need to get more sleep and nap when the kids nap. I take Ambien if my mind is still buzzing when I know it's bedtime. I'm also fortunate in that my husband stays on top of things too and encourages me to get rest when he knows I need it. We work as a team to keep me healthy and I like that.

My doctor and I discussed the recent news of the Kony 2012 movement and how Jason Russell, the filmmaker who was the voice of the campaign, was recently hospitalized in California under a 5150 psychiatric hold. He was trying to raise awareness about a horrible war that was going on which most Americans probably knew absolutely nothing about until news of the viral video his organization created hit the evening news. When I first watched the video two weeks ago, I'll be the first to admit, I was kindof shocked by the message of "Making Joseph Kony famous". But then it hit me. What better way to slap the world in the face to get them to realize how much shear devastation this one person has caused to so many innocent children? The campaign had a call to action too. They want to get the word out to have Kony arrested and put to justice. By the end of the 30-minute video I was a follower. I even shared it on my Facebook wall, encouraging my friends to watch it.

And then the story broke on Friday about Jason's detainment by police after he was found naked on the streets shouting obscenities and pounding the pavement with his hands. The first thing I did was remove the share post of the Invisible Children Kony 2012 campaign from my Facebook wall.

How incredibly narrow-minded and judgmental of me to act in such haste. I immediately didn't want to be associated with the guy just because he had suffered a public mental breakdown? Wow. Talk about needing to have an introspective weekend.

All I could do was think back, all weekend long, about how his story has some similar characteristics to my own. Not nearly on the same scale, of course, but in small part, similar. At the time of my first psychotic episode, I was under a great deal of stress from my career and the goals management had set for me in the coming year, in addition to being in the midst of an emotional affair with a co-worker and mid-way through building a brand new single-family house with my husband. Talk about having a lot on my plate.

I feel so blessed to have had the support I did when I went through that most trying time of my life (and theirs, I'm sure.) My husband did not abandon me, my parents and in-laws wrapped their arms around me in support, and my closest friends were there to listen to what I was going through whenever I needed to talk. I was so lucky that I didn't have to suffer in the public eye like Jason is right now.

I'm sure there were things said behind my back by people wondering what the heck was going on with me. But I didn't have to read about it online or hear about it on the news like his friends and family are doing right now. I pray that they don't read or hear the negative words being thrown about on the Internet and news talk shows, and that if they do, that it only strengthens their defense for him and their efforts to help him get well. I'm praying for him. He's done so much good work. He does not deserve all the hate. Not one bit of it.

I am not proud of my initial reaction to what happened to him. I wanted to write about it here to help teach myself, someone who suffers from a mental illness which caused four psychiatric hospital stays, not to turn my back on someone because they are going through a trying time. Let this be a learning experience to myself and the other 83 million people who watched the video. Don't turn away because I believe that some people come into our lives as blessings, and others come into our lives as lessons.

Can friends double as therapists?

I find myself wondering why my condition is so difficult for people to talk about. I am someone who wears my emotions on my sleeve, and when I feel a need to talk about what I'm thinking or what I've gone through in the past regarding my bipolar diagnosis, it's sad to me that I usually feel completely alone. My husband is of course always here and will listen whenever I need a shoulder to cry on. And I do feel as though my support system is strong. But sometimes I wish that more of my girlfriends would show an interest in what I have been living with these past six years. It almost feels like a dirty little secret. Except it's not dirty, and it's not even much of a secret anymore. I guess that people are just uncomfortable discussing mental illness. And that makes me sad. What got me started thinking about it was my drive home this weekend. My high school girlfriends and I had planned a girls' weekend to catch up and unwind without the stress of having to chase around toddlers, change diapers, and do naps, baths and bedtimes. (Our husbands graciously all agreed to our request for some R&R and amazingly we were able to find a weekend that worked for everyone.) Except the weather decided not to cooperate and instead of the beach for four days of sun, sand and cocktails, we were forced to choose a different location. One of the girls had just sold her house, and she was in the process of moving out so we gathered some air mattresses and crashed there for three days while Hurricane Irene wrecked havoc all up and down the East Coast. Luckily for us it was not much more than a bad thunderstorm with heavy winds by the time it got to our area.

I guess a part of me was hoping that at some point over the weekend I'd get a chance to talk with everyone about my hospitalizations, my recoveries, and my hope that I can somehow change the public's perception of bipolar disorder and postpartum psychosis by telling my story and the lessons I've learned. But our conversations seemed to revolve more around our kids, work, and family life in general. Don't get me wrong, I had so much fun getting to catch up and spend time with some of my friends who I have known for the longest time. The memories we made this weekend were priceless. I should probably get back to seeing my therapist regularly again instead of trying to turn one of my friends into my own personal Carl Jung. It's on my to-do list for tomorrow morning.

My inspiration for this blog

Bipolar I is my diagnosis but I try not to let the label get to me too much. I definitely think about it on a daily basis, but I'm not embarrassed or ashamed of it anymore like I was back when I was first diagnosed. Sure, the stigma is still there, but it's beginning to fade. I hope that by putting it out there and by telling the world that I am living with this illness, and living a very fulfilling life I may add, I may inspire other women to seek the help and support they need in order to be able to have a family of their own if that is what they are wishing for. I was at an extreme low and was so devastated by the state of my mental health that I had convinced myself that I may never get the chance to become pregnant to start a family with my husband. But once I found the right medication and the right doctor, I was able to make my dreams of an amazing family come true and it was worth all the struggles and heartache, the four hospitalizations and the recovery time, to get where I am at this moment right now. Lately at night when I am drifting off to sleep, I find that I am reminding myself how lucky I am to have an incredible husband who loves and supports me, two beautiful healthy children, an amazing family surrounding me in my parents, brother and his wife, and in-laws and sister-in-law in addition to an extended support system of loving friends whom I trust so much. It sometimes doesn't seem real. But I am living proof that just because a person is living with a mental illness doesn't mean they can't work hard to manage it well and this blog is my way of giving back. I want to take the past six and a half years and share what I have learned from my journey to somehow help other young women who may have been feeling the way I was feeling back at the beginning of when it all started for me.

If you like what you are reading, and know someone who could benefit from my experiences, please, pass on the link to my blog. Over 5 million Americans live with this illness, so chances are within your family, friends, work, school, or church you probably know someone who may be suffering. They may find comfort in reading a story of someone who is doing better than average at managing it. I know I always do.