Checking in with the doc & Kony 2012

Had a checkup with my psychiatrist today. I brought the kids with me since it's only a 30 minute appointment and it was right at 12pm, so I fed them before we left and brought the ipad to try to keep them occupied. She brought in a few toys for my little man to play with and my daughter sat in the stroller happily tapping away at the ipad. A tiny bit distracting, but nothing a mom of two toddlers isn't used to. I like how my doctor asks about my writing. She knows it is important to me and she supports my voice. My last psychiatrist didn't read my book draft since I became emotional during the one appointment when I told her about it, handing her the draft to read. She told me at the next visit that she hadn't read it since I became so upset. The fact that she didn't read it (or so she said) made me sad. I was handing her a glimpse into my thoughts, feelings, and emotions having lived with bipolar disorder and she turned around and told me what felt like "you're not worth my time outside of paid appointments."

I would have stopped seeing her, but didn't really have a choice since insurance was covering my visits at almost 90%. So I stuck with her until our insurance changed and I was forced to find a new doctor. I was lucky enough to find a very good one whose office is only 5 minutes from our house.

 

We talked about my mood during today's visit and I admitted I've had some hypomanic periods over the past two months, but they are manageable. I always have a good sense of awareness about my moods and when I feel an elevated period, I know that I need to get more sleep and nap when the kids nap. I take Ambien if my mind is still buzzing when I know it's bedtime. I'm also fortunate in that my husband stays on top of things too and encourages me to get rest when he knows I need it. We work as a team to keep me healthy and I like that.

My doctor and I discussed the recent news of the Kony 2012 movement and how Jason Russell, the filmmaker who was the voice of the campaign, was recently hospitalized in California under a 5150 psychiatric hold. He was trying to raise awareness about a horrible war that was going on which most Americans probably knew absolutely nothing about until news of the viral video his organization created hit the evening news. When I first watched the video two weeks ago, I'll be the first to admit, I was kindof shocked by the message of "Making Joseph Kony famous". But then it hit me. What better way to slap the world in the face to get them to realize how much shear devastation this one person has caused to so many innocent children? The campaign had a call to action too. They want to get the word out to have Kony arrested and put to justice. By the end of the 30-minute video I was a follower. I even shared it on my Facebook wall, encouraging my friends to watch it.

 

And then the story broke on Friday about Jason's detainment by police after he was found naked on the streets shouting obscenities and pounding the pavement with his hands. The first thing I did was remove the share post of the Invisible Children Kony 2012 campaign from my Facebook wall.

 

How incredibly narrow-minded and judgmental of me to act in such haste. I immediately didn't want to be associated with the guy just because he had suffered a public mental breakdown? Wow. Talk about needing to have an introspective weekend.

All I could do was think back, all weekend long, about how his story has some similar characteristics to my own. Not nearly on the same scale, of course, but in small part, similar. At the time of my first psychotic episode, I was under a great deal of stress from my career and the goals management had set for me in the coming year, in addition to being in the midst of an emotional affair with a co-worker and mid-way through building a brand new single-family house with my husband. Talk about having a lot on my plate.

I feel so blessed to have had the support I did when I went through that most trying time of my life (and theirs, I'm sure.) My husband did not abandon me, my parents and in-laws wrapped their arms around me in support, and my closest friends were there to listen to what I was going through whenever I needed to talk. I was so lucky that I didn't have to suffer in the public eye like Jason is right now.

I'm sure there were things said behind my back by people wondering what the heck was going on with me. But I didn't have to read about it online or hear about it on the news like his friends and family are doing right now. I pray that they don't read or hear the negative words being thrown about on the Internet and news talk shows, and that if they do, that it only strengthens their defense for him and their efforts to help him get well. I'm praying for him. He's done so much good work. He does not deserve all the hate. Not one bit of it.

I am not proud of my initial reaction to what happened to him. I wanted to write about it here to help teach myself, someone who suffers from a mental illness which caused four psychiatric hospital stays, not to turn my back on someone because they are going through a trying time. Let this be a learning experience to myself and the other 83 million people who watched the video. Don't turn away because I believe that some people come into our lives as blessings, and others come into our lives as lessons.

Mommyhood has been good to me

The year after I was diagnosed, I found a support group for those suffering from Bipolar Disorder and I joined. I started attending meetings weekly and got to know some of the group members. Each week there were regulars and newbies. I found the group meetings helpful in my recovery process and my journey to accept this illness that I will be dealing with for the rest of my life. We would basically just go around the circle and each person would take a few minutes to talk about how their week was, how they were feeling, and then the group would offer suggestions on any issues they were struggling with. We weren't supposed to talk about meds, but of course everyone had opinions on them so that often came up. It was before we had started thinking about having kids. I was just trying to figure out what was going on with me and how I could best handle my severe anxiety and depression now that I was out of the state of mania that caused my hospitalizations. The last thing I was ready to think about was throwing kids in the mix, sometimes I felt like I could barely take care of myself. How would I ever be able to handle one baby, let alone the two I had always dreamed of. Yet I still knew it was something I wanted for us, and my husband had said he was ready to try whenever I felt that I was. He was (and is) always so patient about things.

If there is one thing I remember looking back on those meetings, it is this one woman. I can recall her so vividly, and find myself thinking of her from time to time, even though it's been years since I've attended one of those meetings. She was very petite and seemed so frail, often shaking as she spoke during her time to talk at the meeting. She had two kids and if I remember correctly they were about 6 and 9 or something along those ages - a boy and a girl. And she was married too, it seemed her husband was pretty supportive and caring. But it made me so sad to listen to her talk. She was on such a potent cocktail of meds and yet, she was still struggling so much with her anxiety and depression. She often spoke of how she could barely get out of bed in the morning to fix her kids breakfast and get them off to school. I found myself wondering if that would be what it would be like to be a mom who had bipolar disorder and two kids.

I am so lucky. Her situation is the complete opposite of my life as a mom.

Sometimes when I put the kids to bed at night I'll wish it was morning already so I could get them up to play again. Usually as they are walking up the steps to head up for bathtime, I think about how much I love being their Mommy. It's the best job I could have ever asked for and I never want it to end. Today I found joy in the midst of changing a poopy diaper which had leaked. I had my 10-month old daughter all clean and as I propped her up, naked on the bottom half, so that I could wrap up the dirty diaper, she peed all over the hardwood floor while holding onto the baby gate. I couldn't help but crack up laughing. It's the little things. I should have taken a picture, but I was too busy laughing and cleaning up the mess.

I hope that my friend from the support group has been able to find a good doctor who found the best combination of meds and therapy for her to improve her situation. Because really, that is what it comes down to when you are living with bipolar disorder. A good doctor, the right meds, regular therapy and a solid support network.

My support system

I've mentioned already in previous posts that my husband, parents, brother and wife,  in-laws and my sister-in-law are all incredibly supportive and loving when it comes to helping me manage my bipolar disorder. They are the people I consider to be on the front lines of my support system. The inner circle. But there is an additional outside ring to my support system circle. I guess you could call it my secondary support system. But it doesn't mean that it is any less important than the inner circle. I consider them to be almost equal.

I had a call tonight from an old family friend. He's actually one of my dad's best friends from college and he and his wife live fairly close to where I am. He calls and checks in on me from time to time and I feel lucky to have him. He's in my support system because he knows about my condition and he almost always asks how I'm feeling at some point in our conversations. And I know that if I ever needed help, I could call on him and he would be there. Along with his wife and their kids who I am also close with.

It's so important to have a strong support system in place, especially when you are dealing with a disease like Bipolar Disorder. Having people who know you inside and out, and who aren't afraid to ask you, "How have you been feeling? and, "Are you taking your meds?" can seem so simple, yet can mean the difference between life or death for some people.

I have five girlfriends who know my history and I can always talk with them about my struggles. They mean the world to me. They call me out if they notice something is off about my mood. I know that I am very lucky.

Two of these girlfriends even came to visit me in the hospital after I had my son and was hospitalized when he was just five weeks old. They came to a psych ward. The crazy house. They saw me at one of my lowest lows, and yet, they do not think any less of me. I sometimes think that I don't thank them often enough for their support. I need to work on that.

Be thankful for those people in your life who support you no matter what. Remember that they were there at your low points, and they helped pick you back up. This way you can repay the favor when you notice they could use a little support. Because the road goes both ways.